Our hospital journey continues.......slowly

As most of you are aware I have had quite a scare with FD's blood test results lately. I was so happy to be able to blog yesterday that all was OK. Totally premature of me to write that blog! FD had an appointment today with her consultant who was going to confirm that surgery was going ahead on 13th March and carry out more x-rays. Well, we had a series of x-rays. Poor FD was twisted and turned every conceivable position as for the x-rays. Not easy for a child who now has quite limited mobility, but she never complained and was so good.

 

After the x-rays we then had a consultation with the surgeon. We informed him of FD's recent blood tests an that the GP was happy with the outcome of the tests. He, on the other hand was not! He felt it warranted further investigation. So, FD's operation has been postponed until at least April / May time, providing that we have the blood query sorted by then. The surgeon phoned the GP who had upset me so much the other day and has instructed her to make an urgent referral to paediatrics for further investigations. Hopefully this appointment should come through quite quickly. The surgeon just does not think its ok to just forget that FD has an anomaly in her blood, as suggested by the GP. He is concerned that there may be some underlying health condition after all or something that may affect her bloods ability to clot.

So, in the space of 24 hours we have gone from being elated and relieved that the GP was not concerned about the blood test results, to feeling like we have been trampled all over. Its the worst thing ever. I am trying so hard to keep a smile on my face even though I actually just want to scream and shout and have a really big temper tantrum! But, I shall pull my Superwoman knickers up to my earlobes and get on with it. I have work in the morning, which of course will be an absolute joy (note sarcasm here)!

But, I have noticed that my blog has been more than a little depressing lately so I thought I would share something funny that happened at the hospital today. FD was waiting to go into the xray room for more xrays. We were sitting in the changing cubicle and I was filling out the little 'do you think you might be pregnant form' on behalf of FD. Despite all of FD's difficulties her reading ability is outstanding for a child with a severe learning disability. So, she read over my shoulder and proudly announced 'Of course I am not pregnant! I haven't done the jiggy jiggy dance with a husband'! She just rolled her eyes and announced that such a question was ridiculous! She was only 13! Awww the innocence of her. I hadn't the heart to tell her I've seen some pregnant 13 year olds! Once she'd had the xray and we made our way back to the waiting area to see the consultant we passed a young girl in a school uniform holding a baby. FD looked at me and said 'well she's obviously been jiggy jiggying!' No answer to that is there!

After our hospital appointment I decided that FD should be treated to a nice lunch in her favourite restaurant. FD was thrilled that we were served by a young, good looking waiter. She is still going through her man mad phase and makes no secret of it. I had to remind her that winking at the waiter would only make him forget what we were ordering. She spent the entirety of lunch staring at him, smiling and telling me she thought she might be in love. AGAIN! She did actually ask me if I could get his phone number but I reminded her that she was only 13! When we got home she threw herself onto the sofa, put her hand on her head and announced 'I've had SUCH a stressful and tiring day and need a power nap'! I know exactly how she feels!